Short movie about narcolepsy by Moritz
Moritz Högemann (Digital Content Creation) made a short movie about living with narcolepsy.Â
Short movie about narcolepsy: personal and scientific
Silvia Melzi (SLEEP team, Center for neurosciences of Lyon) made with a short movie with Hugo Cayla (7 points productions) for the international festival for scientific films of Parisciences. They won the first prize of the symbiose contest. The movie is both personal and scientific… and it is about narcolepsy.Â
Narcolepsy Masterclass and Days in Berlin 2021
This year the EU-NN organized the 12th Narcolepsy Masterclass and 17th Narcolepsy Days, due to corona again this year in hybrid form in Berlin. The EU-NN board, the local organizers (Dr. C. Veauthier and dr. U. Kalweit), the speakers and numerous clinicans, researchers and patients were physically present in Berlin, while other participants followed the […]
Statement on vaccination against COVID-19
March 3, 2021 Several vaccines have been approved or currently are under consideration for the vaccination against the SARS-CoV 2 virus. To date, there is no evidence that these vaccines increase the risk of developing narcolepsy or that, in already diagnosed narcoleptic patients; narcolepsy symptoms may worsen after these vaccinations. However, it should be noted […]
New 2013 incidence peak in childhood narcolepsy: more than vaccination?
On behalf of the European Narcolepsy Network (EU-NN), Zhang and colleagues1 recently discovered a new incidence peak in narcolepsy in 2013. The researchers used predictive modelling on the EU-NN database to assess possibly increases in incidence rates of narcolepsy type 1 over the past two decades. They interestingly reported a new incidence peak in 2013 […]
First Hybrid Narcolepsy Masterclass and Day in Berlin 2020
This year it is the second time that the EU-NN organizes the Narcolepsy Masterclass (11th) and Day (17th), due to corona this year in hybrid form. The EU-NN board, the local organizers (Dr. C. Veauthier and dr. U. Kalweit) and the speakers were physically present in Berlin, while other participants (including many patients) followed the […]
Infographic: Studying with Narcolepsy
James Corbyn, writer and journalist, has made a very useful infographic about studying with narcolepsy. Follow this link to see it.Â
EUNN Board meets Italian Patient Society in Genua
The EU-NN board met with representatives of the Italian narcolepsy patient society (https://www.narcolessia.org) September 14 in Genua in order to discuss new ways to strengthen the ties between the EU-NN and European patient societies. Â
Report from Patient Session during EUNN Narcolepsy Day 2019 in Bern
EU-NN Patient Session In a break from tradition, the Patient Session was moved from Sunday to Saturday am and all delegates and speakers were provided with a task set by patient representatives from various country associations. 12 workgroups were formed across 4 rooms with mixed teams of patients and clinicians. Each group was tasked with discussing issues surrounding the “Quality of […]